Thursday, December 18, 2008

What this blog is all about....

I just started a new protocol for improving/recovery from The Worst Illness Ever (also known as CFS, ME, CFIDS, and 1000 other names). I'm also working on recovering from PTSD (post-traumatic stress disorder), scoliosis, and negative thought patterns.

Since I've had CFS since 1987, I've tried a lot of new protocols, new products, new doctors--always with hope that this time I'll make permanent progress. I've nearly recovered 3 times, and then had 3 really bad relapses, the last one in October 2007. Every time I learn about something new, I wonder Should I try it? Can I afford it?

If you have CFS, ME, PTSD, FMS, Lyme, or any other chronic condition, you've probably had similar thoughts. Everyone you meet says you should try this or that -- isn't it amazing how everyone else seems to know how you can get better? -- but one person's information conflicts with the other, one doctor's advice conflicts with another. And with CFS, you don't have the time or the energy to research it all, nor the expertise to understand it, nor the ability to concentrate as well as you used to. If you are interested in exploring how improving methylation can potentially help you, read on.

Rich van Konynenberg has been researching CFS for over a decade. (I'll tell you more about him in a later post). I met him through the internet from his posts on various discussion groups. A few years ago he posited that CFS became chronic (e.g. people didn't recover from it as they might from a cold or flu) because glutathione, a molecule found in every cell of the body became so low that a vicious cycle started up. Glutathione is especially important for detoxification and immune system function. (It turns out to be low in many other illnesses.) I started taking intramuscular injections of glutathione and immediately felt a terrific lift. But I still relapsed when I started getting really active.

In the last few years, Rich has expanded his understanding to the relationship between glutathione and the methylation pathways. Methylation is a process that goes on in every cell of the body (more on this in another post). I suspected my methylation was a little bit off because I always have high normal or slightly high values on blood chemistries for the two items that depend on methylation: MCV and MCH. This fall I did a methylation panel from Vitamin Diagnostics that Rich recommends. A whopping 2/3 of the values were out of range (8 abnormals out of 12.) I finished my consult with him yesterday and mailed out a huge check today. Stay tuned to find out if my investment was worth the cost.