Saturday, June 26, 2010

Unfolding Blessings leading to recovery

Three weeks since the Trivedi retreat, I'm still bubbling with enthusiasm.  Every day I move closer to recovery, millimeter by millimeter.  Twenty two millimeters make an inch -- a real, visible difference!

I have moved up a notch on the Bell Scale from a 30 (during April relapse) to a definite 40 going on 50.  Dr. David Bell defines a 40 and a 50 thus:
40 Moderate symptoms at rest. Moderate to severe symptoms with exercise or activity; overall activity level reduced to 50%-70% of expected. Not confined to house. Unable to perform strenuous duties; able to perform light duty or desk work 3-4 hours a day, but requires rest periods.
 50 Moderate symptoms at rest; moderate to severe symptoms with exercise or activity; overall activity level reduced to 70% of expected. Unable to perform strenuous duties, but able to perform light duty or desk work 4-5 hours a day, but requires rest periods.
The categories seem limited to me because I'm so much more focused on what I can do and, perhaps, because I've been sick so long I've forgotten what it is like to be completely asymptomatic.  Here are some of things I now can do, compared with 3-10 weeks prior.

  • now 4 loads of laundry in 4 days  v.  used to do 1 load in 3 days
  • prepare easy meals and clean up afterwards   v.  left cleanup for someone else
  • go the stores and do other things afterwards  v.  used to go to store and rest
  • skip nap if I get 8 hours of sleep  v.  couldn't function without nap
  • wake refreshed after 7-8 hours sleep  v.  exhausted and groggy in morning
  • 15 min anaerobic exercise (weights) without PEM  v. always tired after exercise and sick next day
  • shower, straighten up, do something else  v.  showering always left me tired
  • walk 4-6 blocks in divided doses   v.  used to walk only around the house

Since the Trivedi blessing energy worked on my heart, I've only had very slight palpitations, like a soft flutter, about 3 times -- none of that out-of-control forceful palpitations like a wild animal trapped in a cage. Recording blood pressure and pulse 2-4 times a day, I see a pattern of decreased tachycardia.  I recover my quickly from overexertion.

Standing is still my biggest issue.  If I have stress, if I don't sleep well, my blood pressure drops and I get symptoms of orthostatic intolerance after a few minutes on my feet.  If I am rested and relaxed, if my blood pressure is over 100 systolic and 75 diastolic, I am able to stand for a longer time without symptoms.  Because of the standing problem, I'm not quite back to where I was in March 2010, before relapsing.

I haven't pushed the envelope to see how far I can go.  I just find myself doing a little bit more every day.

To be fair, I ought to point out that I've had some symptoms re-appear.  I barely worked on the computer and didn't have time to blog for over a week because every night, by 8 pm, my right eye would ache, my right tonsil would swell, and my right shoulder and hip would hurt.  I'd have to lie down with an ice pack, or soak in epson salts for a hour to get a little relief.  It hasn't bothered me the last two nights.

Also new has been a few days of muscle tension.  In the past I had muscle all the time; this (as well as depression) got me into yoga.  I found that doing hatha yoga postures relieved my body tension; it also helped me deal with insomnia.  As unpleasant as it is, I'm celebrating that I now have the energy to get tense!  Hopefully I'll soon develop the energy for a vigorous-enough yoga practice to release the tension.

My attitude towards new symptoms has been positive:  I see them as the body's attempt to heal.  For the eye pain, I imagine my retina trying to repair the damage from the retinal detachment.  For the tension, I celebrate the capacity of my adrenals to make more stress hormone.  This attitude in itself is worth all the trouble I went to in Chicago!

May you all find a path to recovery!  I'm still working on developing a Trivedi effect (tm) study for ME-CFS in hope of helping those who can't afford to pay his fees for blessings.


  1. So glad you're doing better, Janis!

  2. Hope you can get better too. You and other housebound friends are why I am working hard to get a study together on the Trivedi effect for ME-CFS.

  3. You're progress is wonderful! I'm so glad you are doing better! I really enjoyed your post!

    Chest pain is considered a chief symptom of heart related problems. It can occur due to various causes such as heart attack, pulmonary embolism, thoracic aortic dissection, oesophageal rupture, tension pneumothorax and cardiac tamponade.

    By conducting several medical tests, the above causes could be ruled out or treated as recommended by medical professionals. If acute chest pain occurs, the patient should be admitted immediately for observation and sequential E.C.G.'s are followed up.

    Just like in all medical cases, a careful medical history and detailed physical examination is essential in separating dangerous from minor/trivial causes of disease. Sometimes, there is need of rapid diagnosis to save life of patient. A deep study of recent health changes, family history, tobacco consumption, smoking, diabetes, eating disorders, etc. is useful in treatment of chest pain.

    Features of chest pain could be generalised as heaviness; radiation of the pain to neck, jaw or left arm; sweating; nausea; palpitations; pain coming from exertion; dizziness; shortness of breath and a sense of impending doom. On the basis of these characteristics, a number of tests can be carried out for proper treatment. X-ray and CT scan of the chest help in determining the basic cause of pain. An electrocardiogram helps in detailed study of the problem.


Please add your comments here. If you have a question specific to your own condition, please e-mail me directly at I cannot give medical advice. If you want to suggest a product or therapy you think I should try, please let me know if you have used it, what you used it for, and how it helped you.